Let me tell you how the morning unfolded. I had a long overdue appointment scheduled with the Neurologist today at 9am to go over recent nerve and muscle tests on my limbs. I was previously provided with the results by the office that performed the tests, but I need them to be translated into layman’s terms and to discuss what it all means. I have been waiting in anticipation to have this next step happen, but I have only been met with one delay after another. To say I was looking forward to this moment was an understatement. For this morning’s appointment, I had my transportation scheduled in advance with the taxi service provided through my medical insurance. I received a message last night that they were scheduled to pick me up at 7:40am. I was so nervous this morning that I called the taxi service first thing just to double-check the pickup was scheduled. I was prepared and ready for my pickup, but the time came and passed, and it was now 8:00am. So now I am really getting nervous that I am not going to make it on time. I received a call from the taxi driver at 8:15am, and he stated he was on his way and assured me that I would not be late for my appointment.
Immediately after ending my call with the taxi driver, the neurologist’s office called me, and I was informed that the doctor had called in sick. The thought of why you waited until now to tell me crossed my mind. My stomach sank, and I told her I needed to call the taxi driver back because he was going to be at my house at any minute. I called the taxi driver to explain the situation, and he informed me that it was no problem. I even told him that I can provide a doctor’s note explaining what happened. Luckily, since it is through my insurance, there is no charge, but I was worried they might want to charge me a cancellation fee.
I called the neurologist’s office back to reschedule the appointment, and they informed me we can do a televisit appointment at noon today. Obviously, that is more convenient for me, so we scheduled it. I check into the appointment on my phone about 15 minutes before noon. So again, time just keeps ticking away. I even sent a message through the app confirming the appointment, and they did. The next thing you know, it is 1:15pm, and again I am sending another message asking what the delay is. I received a message that they are sorry, but they will have to reschedule my appointment. I cannot put into words how upset and disappointed I was feeling.
Since the beginning of my interaction with this office, it has been lacking in professionalism, efficiency, and the Neurologist did not seem to really show interest in my situation and concerns, and was quick to pass on my symptoms as being associated with my endocrine issues. When in fact, she had no idea what she was talking about, and after speaking with my Endocrinologist, I was referred back to her. Needless to say, I have been anxious to have this appointment to hear what she has to say about these results. Then, based on what she states, I can make an informed decision on whether to stay with her or explore options for another Neurologist for a second opinion.
This is not my first time having to deal with physicians like this, and doctors’ offices that can be lacking in doing their jobs. I know the drill, and I play the game and jump through the hoops. After having a brain tumor removed 17 years ago, I was diagnosed with Secondary Adrenal Insufficiency, Hypothyroidism, and Traumatic Optic Nerve Neuropathy. I have learned to be an advocate for myself and not be afraid to speak up and ask questions. Many physicians whom I have encountered over the years did not know how to treat my disease of Secondary Adrenal Insufficiency. I learned that I needed to keep learning and educating myself on my disease so I can be prepared to ask the right questions and discuss different available treatment options.
All in all, this was not an absolute bust of a day. Four out of the six items on my to-do list were done. It was an annoying hiccup to my day, but it is not going to stop me from pressing on and not stopping until I get answers.
The World of Dlo 